Anyone else with the gardners syndrome/ familiar adenomatous polyposis disease, if so how bad is yours and how do you deal with it?

[Anonymous]

I have it and I've had a total colectomy, except I didn't get the bag thank god haha but I get these bone growths appear in random spots from time to time and for now they are in hidden spots but I'm afraid they will event appear in somewhere really cuss able like my face or somewhere like my around my dick and it's freaking me out.

[Leonharted]

Sounds awful.