Do you suffer from (EDS) Ehlers-danlos Syndrome? If so, how does it affect you? What type do you have?

[LovingJo]

Ehlers-Danlos syndromes (EDS) are a group of rare inherited conditions that affect connective tissue.

Connective tissues provide support in skin, tendons, ligaments, blood vessels, internal organs and bones.

Symptoms of Ehlers-Danlos syndromes (EDS)
There are several types of EDS that may share some symptoms.

These include:

an increased range of joint movement (joint hypermobility)
stretchy skin
fragile skin that breaks or bruises easily
EDS can affect people in different ways. For some, the condition is relatively mild, while for others their symptoms can be disabling.

The different types of EDS are caused by faults in certain genes that make connective tissue weaker.

There are 13 types of EDS. Most of which are rare.

Updates

+1 y

Have you been diagnosed* with EDS? If so, what type and how does it affect you?

[MORPHEUS_12]

I have EDS III or hypermobility type. I also have overlapping symptoms of Classical EDS. I was diagnosed at 37. I went to see an orthopedic surgeon because of groin and buttock pain. He examined me and said that my range of motion was so great, he told me he thought I had a connective tissue disease. I saw a geneticist who officially diagnosed me. I scored a 9/9 using the Beighton test. When I was younger the only thing that hurt were my knees. The bottom started to fall out in my mid-thirties. I was forced by my employer to retire on disability in 2015. I am followed by a world-renowned geneticist. I have had 32 surgeries in my life. I just had a partial knee replacement yesterday. I have even had brain surgery to implant a VP shunt. Please feel free to ask me any questions

[LovingJo]

Been there, done that, got the whole wardrobe 😂🤦🏻‍♀️❤️

[Guardian45]

No, I don't believe so