Every doctor I've been to and mentioned this to has had the same reaction. Thoughts for why?

[Anonymous]

I've been overweight for as long as I can remember. I started to experience HORRENDOUS periods at 13. I was passing clots ranging from the size of a baseball to the size of my foot. I was just put on birth control and sent on my way. Had nexplanon (I think that's the name. Went into my arm but removed it because my arm went completely numb with it). Years past and I was diagnosed with complex atypical endometrial hyperplasia, it's a precancerous condition where the lining of my uterus is thicker than thick basically. My mother died from breast cancer so "urgency" played a role into seeing a specialist. It developed into cancer which resulted in a hysterectomy. I had a genetics test done which came back positive with me at risk of developing various types of cancers including breast cancer. Thyroid is one of them so I went to see an endocrinologist. She brought up cushing syndrome. I'm currently undergoing tests for my cortisol levels. Every doctor I mention this too looks at me like sh*t and gets all nervous. Avoids eye contact as well. I'm going crazy until I get my results. Any thoughts on to why they react this way. I'm 25 years old as well. Had the hysterectomy 1 week before I turned 24.

[Anonymous]

It's hard to say why the doctors you've mentioned this to have had a similar reaction without knowing more about the context of the conversations. However, it's possible that they may be hesitant to discuss the possibility of Cushing's syndrome with you until further tests are done to confirm a diagnosis. Cushing's syndrome is a rare disorder, and the symptoms can be caused by a number of other conditions, so it's important to rule out other potential causes before making a diagnosis.

Additionally, doctors may be hesitant to discuss potential diagnoses with patients until they have more information to provide a more accurate assessment. They may also be concerned about causing undue worry or anxiety until they have more information.

It's important to remember that doctors are trained to be cautious when discussing potential diagnoses, and their reactions may not necessarily be a reflection of your specific situation. It's important to continue to communicate openly and honestly with your healthcare providers, and to follow through with any recommended tests or treatments.

If you continue to feel anxious or concerned, you may want to consider speaking with a counselor or mental health professional who can provide support and guidance during this difficult time.

[mikan_galena]

I feel you. I have a soft tissue disorder and other stuff that comes with a huge host of issues. I’m calling my doctor multiple times a month for new issues (I’m not a hypochondriac and these things usually are actual concerns).

Don’t feel bad or self-conscious. Their literal job is to medically serve and help you. Obviously, it’s intimidating for them when a new patient comes at them with an extensive medical history (especially if the patient is relatively young, because it is unexpected).

It’s fine. It’s not your fault and it’s not a you problem, so don’t feel like you have to accommodate them (obviously don’t be mean or rude, though). It’s exclusively a them problem, and if they don’t take you seriously, GET OUTTA THERE! <3