Why do people work so hard and so much money to keep the disabled kids alive?

By disabled, I'm not referring to the fully mentally intact individual who lost their leg in war. I'm talking about kids who are born with severe disfigurements, diseases, retarded, born without ears, severely autistic kids who can't talk, walk, eat or do anything for themselves. The amount of work it takes to care for them is ENORMOUS. They need 24/7 supervision, meaning there must be someone watching them 24/7. Some have medical needs so they need to be fed at 3am while everyone is asleep. This means someone needs to wake up in the middle of the night to feed them. They can't go to school by themselves due to their medical needs so someone needs to go to school with them. Some of these kids can't poop so they take an enema everyday which creates a huge mess in the bathroom that needs to be cleaned up daily. Your entire life revolves around this disabled person's every need. You can't go out for a walk because he needs to be watched. You miss events or dates because someone needs to feed him lunch at home. You can't sleep through the night because you have to wake up to feed him.

I work a job with a child that is like this... I'm burning out because he never gives me a break. He is exhausting. If he is let loose to run around the house, he will be falling from table tops, turning on the stove, pushing over flower vases. He is 8 years old but has the mental age of a 4 yr old. His family does not want to care for him at all because they're all burn out. I have been calling out of work and the family hates me for it cuz if I'm not caring for him, it means they will have to care for him. This child is an outcast, usually hidden in another room away from everyone else. He is such a big annoyance that the family doesn't want him out of his room.

My question is... why would the family decide to resuscitate him at birth if they just end up not wanting to care for him?

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This kid is not capable of doing anything for himself, can't talk, can't contribute to society. It's a wonder how people work so hard to keep him alive... for what reason? just for him to sit there and cause a mess? stress everyone else out? the government paying millions to hire caregivers throughout his lifetime?
Why do people work so hard and so much money to keep the disabled kids alive?
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