Why does no one understand that autism is a spectrum, not a scale… like no karen no one has it mild/severe…. ableism?

[Laer6845]

[SnowedIn]

Many people don't understand. They have no experience with it and unfortunately don't choose to learn about it. I have hypothyroidism and I'm color blind: people don't understand those either. Nor care. And for a lot of people there's only so much they can learn and know about.

[BoopBoopBeep]

What's the difference between a spectrum an a scale? Meaningful difference. Both imply a range as opposed to a binary on/off.

[Laer6845]

Because a scale is more like “mild” to “severe” and thats not how autism is

[BoopBoopBeep]

According to Mayo: "The term "spectrum" in autism spectrum disorder refers to the wide range of symptoms and severity."

Less severe = 1 on a scale. More severe = 10 on a scale.

5 of us with ADHD manifest in different ways, but the specifics of those ways and degree/frequency to which they occur impacts everyone differently.

[Laer6845]

What is your point of this? That mild/severe autism info is outdated. We are smarter today and know that the terms does not fit reality

[BoopBoopBeep]

Who is the "we" that is smarter than the Mayo clinic? I quoted their current website.

[Laer6845]

I asked about your point. You never answered, i take that as you dont understand what you're saying. Im just saying that people who think someone has mild or severe autism, is outdated. Its not possibke. Someone may have high/low support needs.

[BoopBoopBeep]

I did. Clearly. I asked about scale/spectrum. You answered, saying there's no "severe" autism. I said the Mayo Clinic disagrees with that, and quoted them talking about autism severity. You said that was outdated and "we" are smarter than that. I said it's not outdated it's current and who is the "we" that is smarter than the Mayo clinic, then you didn't answer.

WHO also agrees, by the way, so if the difference in spectrum and scale is that one can't have severity so it doesn't apply, then that's not in line with the current literature, which says there IS a degree of severity.

[Laer6845]

People can struggle more with specific symptoms, and less than others.

But the autism itself can not be mild/severe.

No one has mild autism, no one has severe autism.

[BoopBoopBeep]

Do you like the color wheel better that's located here?:
themighty.com/.../

[BoopBoopBeep]

Uh..."No one has mild autism, no one has severe autism."... the high functioning attorney with Asperger's who can't get any social services because they don't have "enough autism" is different than the non/low-functioning level 3 non-verbal person who rocks back and forth and screams when someone touches them at random.

There is mild and severe of everything in life.

[BoopBoopBeep]

Autismconnect. com talks about the three levels of severity.

[Laer6845]

Dont you think there is a reason to changing it to asd and removing aspergers? Is it more severe to scream when someone touches them than hiding it?

I've been told i have it mild tf, just necause im high masking (masking is harmful and led to cptsd)

[Laer6845]

Yeah its a wheel not a line. Its a apectrum not a scale

[Laer6845]

Icd-10(11) does not go by levels (thank god) so i can not study it here

[Laer6845]

Just because someone reacts more outside than inside does not define severity

[BoopBoopBeep]

Most people, when looking at the wheels, would consider it "further along the scale" the more it's colored in, so saying "no to scale" is semantic to most of them. Especially neurotypical people.

"Just because someone reacts more outside than inside does not define severity"... no not "just"... but someone who cannot function for 15 minutes every time someone touches them is less severe than someone who masks slight discomfort and still works like nothing has happened. That's pretty much the definition of severity or reaction, and the point of the levels is to determine the level of support the person needs. To say "oh we'll all the same" is going to shortchange those who need extensive and sustained support.

"Icd-10(11) does not go by levels (thank god) so i can not study it here." No but DSM V does, and you're in the States with internet why can't you study whatever you want?

Incidentally, ICD-11 all but DOES include severity levels, just not by name

Autism spectrum disorder *with disorder of intellectual development* and with *absence of functional language* (6A02.5) ...

... is far more severe than Autism spectrum disorder *without disorder of intellectual development* and with *mild or no impairment* of functional language (6A02.0)

6A02.0 and 6A02.5 to a neurotypical person is the equivalent of a scale from mild to severe

[Laer6845]

No autistic is the same. WE ARE NOT THE SAME. Agreed. Tf im not the states. And i can not study it professionally on the internet.

Masking is harmful ofc. I can fake functioning when someone touches me.

[Laer6845]

Mild/severe autism is outdated terms. High/low support needs are a better term. I know youve misunderstood quite a lot of my comments (i tried to show some signs tho)

[BoopBoopBeep]

Masking is harmful, yes. But some people can't mask. Their reaction is crippling and they cannot function in society. You can. That is less severe. The person that doesn't react OR mask is less severe than both of you. To a neurotypical person that would be a scale.

"Mild/severe autism is outdated terms." Who says this? Mayo still uses that wording. Autism help groups for families still use that wording. The CDC still uses it. DSM uses "level 1, 2 and 3" but that's only semantically different than mild/severe. ICD 11 demonstrates different severities in different diagnostic codes.

Or are you saying specifically that "mild autism" and "severe autism" are not used (because they've been replaced by numbers) and therefore are outdated terms. I'm not sure I understand what the end point of that is. I thought you were saying there isn't a scale, and 1 through 3 would be considered a scale, as would ICD11's range. The words "mild" and "severe" are not on the scale though, that is true.

There are no "mild fires" and "severe fires". They are "one alarm", "two alarm" and "three alarm" fires. That is still a gradient implying one is worse than the other even though those specific two words are not used.

[Laer6845]

Icd-10 says this. But i can't unmask. That is a very bad problem.

[Laer6845]

If i can function in society. Why was i removed from my parents home when j was 14 then?

[BoopBoopBeep]

I don't have the variables to assess that. Maybe you didn't function well then? Who removed you and why?

[Laer6845]

Kommunen removed me. Lol its just me trying to tell you its bad to assume anything about another person. Especially since its a stress triger for autistics

[Laer6845]

Do you think there was a reason for them to remove aspergers from dsm 5?

[BoopBoopBeep]

Can't say I know anything about Kommunen or German family law.

Honestly DSM5 and asperger's I haven't heard anything about the reason. Admittedly it's not really a pet interest project of mine, but their changes to psychopathy aren't really universally liked either. Seems there was a push for a number of shifts from 4 to 5.

[Laer6845]

I know nothing about germany euther. Why woukd germany matter

[Laer6845]

To bring germanny in rhis is so random

[BoopBoopBeep]

haha my bad... when you said Kommunen removed you... i thought it was a typo of Kommune, the term for municipality in german... as in the city removed you from your german home

[gothbxtch]

yeah so true!! “low functioning “ and “high functioning “ autism are ableist myths.

[gothbxtch]

thank you!

[provokeesmokee]

Explain the difference between your definition of scale and spectrum.

[Laer6845]

A scale is like mild/severe. And soectrum is just where evertone is different

[Christoff92]

Because theirs different types of autism. Both my nieces have autism where they both non verbal for now.

[Laer6845]

There is no different type of asd.

[Laer6845]

“Different types of autism” that sounds very outdated😅😬

[Anonymous]

To most of us it’s a distinction without a difference.

[Laer6845]

Well its obvious that no one can have it mild/severe